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In the News

KMBC 9 - Kansas City boy with rare disorder gets support from local business - 6/18/22

The cause got double the donation thanks to the kindness of a young girl who faced her own challenges.

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KMBC 9 Kansas City - Update 2/17/22

A Cure for Charlie Receives $2500 Donation - 10/19/2021

A Cure for Charlie Receives $2500 Donation - 10/19/2021

Boy with rare disease enters drug trial as family holds onto hope for cure.

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A Cure for Charlie Receives $2500 Donation - 10/19/2021

A Cure for Charlie Receives $2500 Donation - 10/19/2021

A Cure for Charlie Receives $2500 Donation - 10/19/2021

  

ProActive Solutions Celebrates 25 Years by Giving Back

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KMBC 9 Kansas City - Video feature 2/1/21

A Cure for Charlie Receives $2500 Donation - 10/19/2021

KMBC 9 Kansas City - Video feature 2/1/21

 

KC family fighting for cure to rare disease with help from Tyrann Mathieu

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Kansas City Mom Collective Blog - 1/17/21

Kansas City Mom Collective Blog - 1/17/21

KMBC 9 Kansas City - Video feature 2/1/21

It was then that she decided that fight or flight 

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RDMD Blog - 8/14/20

Kansas City Mom Collective Blog - 1/17/21

Fox 4 Kansas City - Video feature 4/21/20

 With no cure for her son’s rare disease, this mom decided it was time to “fight like a mother” 

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Fox 4 Kansas City - Video feature 4/21/20

Kansas City Mom Collective Blog - 1/17/21

Fox 4 Kansas City - Video feature 4/21/20

Family uses stay-at-home order to start new challenge for toddler’s rare disease

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KMBC 9 Kansas City - Video feature 4/19/20

KSHB 41 Kansas City - Video feature 1/21/20

KMBC 9 Kansas City - Video feature 4/19/20

 Home cuts for a cure raising money to research rare disease

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KMBC 9 Kansas City - Video feature 1/24/20

KSHB 41 Kansas City - Video feature 1/21/20

KMBC 9 Kansas City - Video feature 4/19/20

 

Chiefs join Kansas City family's fight against rare disease

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KSHB 41 Kansas City - Video feature 1/21/20

KSHB 41 Kansas City - Video feature 1/21/20

KSHB 41 Kansas City - Video feature 1/21/20

Signed Chiefs football to help fund rare disease cure

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KSHB 41 Kansas City - Video feature 1/16/20

KSHB 41 Kansas City - Video feature 10/30/2019

KSHB 41 Kansas City - Video feature 1/21/20

KC Royals all-time great going to bat for 2 year-old with rare disease

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KSHB 41 Kansas City - Video feature 10/30/2019

KSHB 41 Kansas City - Video feature 10/30/2019

KSHB 41 Kansas City - Video feature 10/30/2019

Kansas City family searching for million dollar miracle for toddler with rare genetic disease

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KMBC News 9 - Video feature 10/10/2019

KSHB 41 Kansas City - Video feature 10/30/2019

KSHB 41 Kansas City - Video feature 10/30/2019

KC family raising awareness, money to cure rare disease

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