Our sweet Charlie boy, was diagnosed with a rare genetic disease called SLC6A1 on August 22, 2019. Charlie has been affected by tremors, seizures, and learning delays. However, there is hope. Right now a gene therapy treatment is in development, but we're in a race against the clock. We must raise the money to advance the science before Charlie's seizures and delays become debilitating.
On January 22, 2021 we are teaming up with Tito's Handmade Vodka, Louisburg Cider Mill and Hy-vee in Prairie Village, KS, to bring you a fun night of Moscow Mules and Bingo.
Kits include 1 bottle of Tito's handmade vodka (375ML), ingredients to make both traditional & apple cider moscow mules (6 cocktials), recipe cards & 2 bingo cards. $60 per kit with additional bingo cards, mule mugs and raffle tickets available for purchase.
Please save the date for our A Cure for Charlie Pickleball Tournament on Satuday, May 15 at Chicken N Pickle in North Kansas City. We will have sponsorship and team registration open in early 2021. More details to follow.
We are excited to have teamed up with KC Joy Project on these beautiful benefit bracelets. Your purchase contributes to SLC6A1 Connect - 50% of the proceeds will go towards raising awareness and funds to advance scientific research that will ultimately result in a cure.
Threads Worldwide creates life-changing work and connection with women around the world through the fair trade of artisan jewelry. They are a preferred vendor, donating HALF of all sales to SLC6A1!
You can arrange a small event (online or in-person) and fundraise for SLC6A1. Invite your friends and family to shop gorgeous jewelry that raises money for our children's future while supporting mothers who are working for their children's futures.
Threads Worldwide's items are handcrafted by mothers in India, Bolivia, Indonesia, Ethiopia, Ecuador, Uganda, Vietnam, and Guatemala. They have a very different fight than we do, and we are all in it for the future of our children!
To shop for a 50% donation - shop here!
The Pura Smart Home Fragrance Diffuser allows you to customize your scent experience with premium, designer grade fragrances from the convenience of your smartphone. We have partnered with Pura and 15% of all sales, when using the code aWayforWill will be donated back to SLC6A1 Connect. Shop now.