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Please help us give Charlie a chance at life!
Our sweet Charlie boy, was diagnosed with a rare genetic disease called SLC6A1 on August 22, 2019. Charlie has been affected by tremors, seizures, and learning delays. However, there is hope. Right now a gene therapy treatment is in development, but we're in a race against the clock. We must raise the money to advance the science before Charlie's seizures and delays become debilitating.
Please join us for our 2nd Annual A Cure for Charlie Pickleball Tournament and Silent Auction at 9 a.m. on Saturday, September 24 at Chicken N Pickle OP. Registration is now open for all players, spectators and sponsors. We hope to make this years tournament bigger and more successful than last years. If you are interested in sponsoring please email Kim Fry at kfry@slc6a1connect.org.
Family farmed organic coffee!!! Free shipping on all orders over $20 and $2 per bag is donated back to Slc6a1 Connect. Please share this with your friends and family!
We are excited to have teamed up with KC Joy Project on these beautiful benefit bracelets. Your purchase contributes to SLC6A1 Connect - 50% of the proceeds will go towards raising awareness and funds to advance scientific research that will ultimately result in a cure.
The Pura Smart Home Fragrance Diffuser allows you to customize your scent experience with premium, designer grade fragrances from the convenience of your smartphone. We have partnered with Pura and 15% of all sales, when using the code aWayforWill will be donated back to SLC6A1 Connect. Shop now.