Our sweet Charlie boy, was diagnosed with a rare genetic disease called SLC6A1 on August 22, 2019. Charlie has been affected by tremors, seizures, and learning delays. However, there is hope. Right now a gene therapy treatment is in development, but we're in a race against the clock. We must raise the money to advance the science before Charlie's seizures and delays become debilitating.
Collect this one of a kind, autographed Kansas City Chiefs helmet personally signed by defensive back Tyrann "The Honey Badger" Mathieu!
Tyrann has been played with the Kansas City Chiefs since 2019, winning a Super Bowl that season and now the AFC Championship in 2020. He previously played professionally for both the Arizona Cardinals and the Houston Texans, and in college for the Louisiana State University Tigers
Purchase a square for $20 ea. for a chance to win one of the following prizes;
1. $100 Jack Stack gift card, Jack Stack Rubs & Sauces Gift Set + $25 Made in KC gift card
2. $50 gift card to Custom Cookies by CC + $50 gift card to Hazel & Ollie + $25 Made in KC gift card and Gift Basket
3. J. Rieger & Co. Boxed Set: (750ml/ each), Rieger’s Gin, Rieger’s Vodka, and Rieger’s Kansas City Whiskey + $50 Dolce Bakery gift card
4. Hostess Brands Gift Basket + $50 Charlie Hustle Gift Card + $50 Houlihans Gift Card |
Overtime Winner (if needed): Kendra Scott Gift Set
Please send payment to @Kimberly-Fry (venmo), Kfreeman3@gmail.com (PayPal) OR email for | Please reference Box # with payment.
Rules and Available Squares Here.
Order your Valentine's Day Cookies from Handmade with Love Creations (KC) from now through Feb. 5 and a portion of all sales will be donated back to SLC6A1 Connect.
We are excited to have teamed up with KC Joy Project on these beautiful benefit bracelets. Your purchase contributes to SLC6A1 Connect - 50% of the proceeds will go towards raising awareness and funds to advance scientific research that will ultimately result in a cure.
Please save the date for our A Cure for Charlie Pickleball Tournament on Satuday, May 15 at Chicken N Pickle in North Kansas City. We will have sponsorship and team registration open in early 2021. More details to follow.
Threads Worldwide creates life-changing work and connection with women around the world through the fair trade of artisan jewelry. They are a preferred vendor, donating HALF of all sales to SLC6A1!
You can arrange a small event (online or in-person) and fundraise for SLC6A1. Invite your friends and family to shop gorgeous jewelry that raises money for our children's future while supporting mothers who are working for their children's futures.
Threads Worldwide's items are handcrafted by mothers in India, Bolivia, Indonesia, Ethiopia, Ecuador, Uganda, Vietnam, and Guatemala. They have a very different fight than we do, and we are all in it for the future of our children!
To shop for a 50% donation - shop here!
The Pura Smart Home Fragrance Diffuser allows you to customize your scent experience with premium, designer grade fragrances from the convenience of your smartphone. We have partnered with Pura and 15% of all sales, when using the code aWayforWill will be donated back to SLC6A1 Connect. Shop now.