Just before his 2nd birthday, Charlie was diagnosed with a debilitating genetic disease so rare that it doesn’t even have a name - yet. With less than 300 known cases worldwide this incredibly rare disease is referred to as SLC6A1, a genetic disorder that causes epilepsy, autism, movement disorder, ADHD and global developmental delays.
After years of struggle and nonstop fundraising, a cure is finally on the horizon using gene therapy. We are now just 1 MILLION DOLLARS away from making this a reality. Once we meet this fundraising goal, we are within reach of a clinical trial which will offer a lifesaving treatment to those suffering from SLC6A1.
Please follow our journey and consider a donation to help Charlie and many other children battling SLC6A1 have A BETTER CHANCE AT LIFE!
Enjoy Frannie Franks this holiday season and 25% of your order goes back to SLC6A1 research. Use promo code- CHARLIE.
Family farmed organic coffee!!! Free shipping on all orders over $20 and $2 per bag is donated back to Slc6a1 Connect. Please share this with your friends and family!
The Pura Smart Home Fragrance Diffuser allows you to customize your scent experience with premium, designer grade fragrances from the convenience of your smartphone. We have partnered with Pura and 15% of all sales, when using the code aWayforWill will be donated back to SLC6A1 Connect. Shop now.