Our sweet Charlie boy, was diagnosed with a rare genetic disease called SLC6A1 on August 22, 2019. Charlie has been affected by tremors, seizures, and learning delays. However, there is hope. Right now a gene therapy treatment is in development, but we're in a race against the clock. We must raise the money to advance the science before Charlie's seizures and delays become debilitating.
Join us on Thursday, November 4 at 6:30 pm CST for a fall-inspired graze board workshop with Grazing KC. The Rochester Brewing and Roasting Co., a new locally owned brewery, roastery and event space in the West Crossroads in Kansas City, MO, has generously donated their event space for the workshop. During this event you will learn tips to make a wow-factor charcuterie board and create your very own graze tray. $75 per person and includes the workshop, ingredients for a personalized graze and a beer flight from Rochester.
Please help support Charlie Fry, Will Feldman and the entire SLC6A1 Connect foundation by participating in our Chiefs vs. Giants Monday Night Football tickets raffle.
The winner of this raffle will receive 2 tickets and a red parking pass to the Chiefs vs. Giants MNF game on November 1 at 7:15 pm at Arrowhead Stadium. Approximate total value is $400+.
Raffle tickets are $15 each or 2 for $25 and are availble for purchase from 10/20 - 10/28. The winner will be randomly chosen and notified on 10/28 at 6:30 pm CST.
We are excited to have teamed up with KC Joy Project on these beautiful benefit bracelets. Your purchase contributes to SLC6A1 Connect - 50% of the proceeds will go towards raising awareness and funds to advance scientific research that will ultimately result in a cure.
Monat's mission is to help people everywhere enjoy beautiful, healthy, fulfilling lives through their exceptional, naturally based products.
This fundraiser is for anyone already using Monat products or considering a change. Shop now through our SLC6A1 partner, Jennie Brane, who is generously donating all her commission to SLC6A1 Connect.
Threads Worldwide creates life-changing work and connection with women around the world through the fair trade of artisan jewelry. They are a preferred vendor, donating HALF of all sales to SLC6A1!
You can arrange a small event (online or in-person) and fundraise for SLC6A1. Invite your friends and family to shop gorgeous jewelry that raises money for our children's future while supporting mothers who are working for their children's futures.
Threads Worldwide's items are handcrafted by mothers in India, Bolivia, Indonesia, Ethiopia, Ecuador, Uganda, Vietnam, and Guatemala. They have a very different fight than we do, and we are all in it for the future of our children!
To shop for a 50% donation - shop here!
The Pura Smart Home Fragrance Diffuser allows you to customize your scent experience with premium, designer grade fragrances from the convenience of your smartphone. We have partnered with Pura and 15% of all sales, when using the code aWayforWill will be donated back to SLC6A1 Connect. Shop now.