who we are
Meet Charlie Fry
Charlie is a sweet, joyful 7-year-old boy who loves life — but every day, he battles a rare and life-altering genetic disorder called SLC6A1. This disease causes seizures, autism, anxiety, OCD, ADHD, behavioral challenges, and cognitive delays.
There is currently no cure. But there is HOPE.
Charlie's family is leading a global effort to develop a life-saving gene therapy that targets the root cause of SLC6A1. With the support of doctors, researchers, and a growing community of donors, they are racing against time to fund this groundbreaking treatment — not just for Charlie, but for all children affected by this rare condition.
You Can Help Save Charlie
Your support can bring us one step closer to a cure. Every donation funds research, accelerates clinical trials, and gives children like Charlie the chance to live the full, joyful lives they deserve.
🧬 Join us in the fight. Be part of the cure.
Fundraisers and events
